Posted by Glenn Camp on January 03, 2004 at 15:18:54:
In Reply to: Re: 18 mos post maze posted by Tim Hawkins on January 02, 2004 at 19:13:42:
Tim, I wasn't saying "the PVC's I have take me to my knees or on the floor" just to have words to take up space in the post. I have said in previous posts that afib attacks that the majority of people on this and other message boards do not experience what I experience when most afib attacks hit me. Sometimes just afib; whereas most now are afib and pvc attacks. Dr's can't figure out if afib 'sets off' the pvc's or whether runs of pvc's set off a 'full blown' afib attack while pvc's are happening. Man it's a heck of a mess. Ask Sarah, she has had the same kind of problems with pvc's. I know because she described me when I first read her email to me about pvc's. If you've ever had them and someone else can describe how they make you feel when they have had them, you know they have experienced them.
All the cardiologists and electrophysiologists say is, 'it's not life threatening'. You've lived this long, so don't worry about it. Just take more medicine so you will not be uncomfortable when you have an attack. The problem is these quacks have never had afib and pvc's and they don't know what the thunder they are talking about. This dadgummed medicine is killing me and it's not preventing attacks, plus them being so debilitating.
Now maybe you can understand a little what I'm saying when I say it's very difficult to travel without someone being with me constantly and pretty embarrassing when you have to uninate when it happens at an inappropriate place not near bathroom facilities. Can you imagine having an attack on an airplane and someone has the 'john' occupied and there's no way you can hold it? Diaper and/or urinal time.
Oh well, I've rattled too long again.
Hopefully with a lot of people praying for me the good Lord will work out a way I can get to a good Dr. and hospital so I can get this terrible crap eliminated. I only know of one doctor, Dr. John Miller, who performs PVA and can ablate areas in both the pulmonary veins and the ventricles to eliminate pvc's and he is at Krannert Institute at the University of Indiana in Indianapolis, Indiana. I'm past ready. I know a lady who is twenty years younger than I, who had the same problem for twenty years as I have, who lives in Dallas, Texas, who went to Dr. Miller in Indiana four weeks ago. She claims she hasn't had any irregular afib or pvc's since the ablation. The only medicine she is taking since having ablations is Coumadin and no other meds from the time she left the hospital. Claims she has had no adverse post ablation problems like I read about from others at all. The only thing she noticed was very occasional light pain because of the abaltions. Claims she is having none of that now.
I don't know how experienced Dr. Miller is or how many ablations he has performed. The lady in Dallas was referred to Dr. Miller by her EP, who also does ablations, because her EP knows Dr. Miller's expertise and also trained under Dr. Miller. I only wish I could find out more information on him and also Krannert Institute as well. My first choice has been CC and second choice is possibly Texas Heart Institute in Houston. Houston is only fours drive south of us here in Texas. We live 125 miles due east of Dallas and travel would be much more convinient and shorter than having two airports to hassle going through. That's the worst part of flying anymore, going through the airports with the delays.
Regards,
Glenn Camp
Kilgore, Tx