Posted by mike johnson on October 18, 2001 at 08:57:59:
In Reply to: Re: Experimental surgery doesn't happen to all. Let's disclose here posted by Ed Wehan on October 16, 2001 at 16:55:59:
SINCE MY NAME IS MENTIONED IN THIS CONVERSATION I FEEL COMPELLED TO RESPOND. I HAD THE MAZE AND IT WAS LESS THAN SUCCESSFUL. HOWEVER I WOULD HAVE IT AGAIN TODAY IF THEY GAVE ME THE SAME 90 PLUS PERCENT CHANCE THAT THIS WOULD GO AWAY. SURGERY IS NOT THE ANSWER TO A-FIB BUT RIGHT NOW ITS THE BEST SHOW IN TOWN. IN THE FUTURE I BELIEVE THAT EP DR'S WILL SOLVE THE RIDDLE OF AF BUT UNTIL THEN THE MAZE IS THE MOST SUCCESSFUL PROCEDURE GOING FOR A-FIB. AS FOR DR COX, A MAN THAT I HAVE NEVER MET. HE CALLED ME AT HOME AFTER READING ONE OF MY POSTINGS ON THE BOARD. HE GAVE ME HIS HOME PHONE NUMBER AND I HAVE CALLED HIM SEVERAL TIMES WITH QUESTIONS. HE HAS TALKED TO ME 45 MIN.TO AN HOUR EACH TIME. I CAN'T SAY ENOUGH ABOUT HIM, THAT HE WOULD TAKE THE TIME TO TRY TO HELP ME WHEN I WAS NOT HIS PATIENT BUT JUST SOMEONE THAT HAD THE PROCEDURE HE DEVELOPED IS A-MAZING. HE COULD SIT AT HOME RETIRED AND FORGET ABOUT THE MAZE. BUT HE FOLLOWS THE MAZE BOARD AND KEEPS IN TOUCH WITH WHAT PEOPLE LIKE ME AND YOU AND EVERYONE THAT HAS HAD THE PROCEDURE IS SAYING ABOUT IT AND THEIR RESULTS. I HAVE FINALLY GOT MY SURGEN FROM THE CC TO CALL ME. THEY BELIEVE THAT I AM JUST A SLOW HEALER. THEY WANT ME TO TO COME BACK TO THE CC TO BE EVALUATED AND TRY A DIFFERENT MEDICATION FOR A WHILE. THEY BELIEVE THAT THIS IS GOING TO GO AWAY AND ADVISED ME TO DO NOTHING FOR AWHILE. I AM IN NSR ALOT OF THE TIME. ITS HARD TO FEEL GREAT ONE MINUTE AND BAD THE NEXT. I NEVER KNOW WHEN THIS TACHYCARDIA WILL HIT ME. IT'S NOT STAYING AROUND AS LONG AS IT USE TO BUT ITS COMING AROUND MORE FREQUENT THAN BEFORE THE ABLATIONS. THE CC BELIEVES THAT THE ABLATIONS HAS RE-IRRITATED MY HEART AND THAT IT WILL CALM DOWN AGAIN. DR. McCARTHY TOLD ME THAT I AM THE ONLY ONE THE MAZE HAS NOT COMPLETELY WORKED FOR THAT HE DID SINCE 1993. HOW SPECIAL DO YOU THINK THAT MAKES ME FEEL. JEANNE PEOPLE WANT TO HEAR YOUR STORY JUST MAKE SURE IF YOU ARE GOING TO TELL IT THAT YOU GIVE ALL THE DETAILS. MIKE JOHNSON
- Re: Experimental surgery doesn't happen to all. Let's disclose here Sheena Sims 09:05:11 10/21/2001 (0)
- Re: Experimental surgery doesn't happen to all. Let's disclose here Jeanne Szakacs 15:24:25 10/18/2001 (0)